Many Patients Do Not Engage Health Care Provider During MS Relapse

Only half of patients reported always engaging health care providers.
Only half of patients reported always engaging health care providers.

HealthDay News — The rate and frequency of relapse vary for patients with multiple sclerosis (MS), and many report not visiting a health care provider during relapse, according to a study published in the November issue of Multiple Sclerosis and Related Disorders.

Tara A. Nazareth, from Mallinckrodt Pharmaceuticals in Bedminster, New Jersey, and colleagues used data from the Multiple Sclerosis in America 2017 survey to obtain insight into relapse prevalence, symptoms, and health care provider (HCP) engagement. 

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The researchers found that 73.1% of patients experienced a relapse in the 2 years preceding the survey, for a median of 2 relapses. The annualized relapse distribution was 44.1, 35.5, and 20.2% of patients with less than 1, 1 to 2, and more than 2 relapses, respectively. In patients reporting relapses, 62.5, 10.9, and 13.6% cited an average relapse duration of less than 1, 1 to 2, and more than 2 months, respectively. With respect to HCP engagement, 46.9, 27.3, 18.5, and 7.3% of patients reported doing so always/often, sometimes, rarely, and never, respectively. Reasons for not engaging an HCP were that relapse was not severe enough, the HCP was unhelpful or did not ask to be contacted, the treatment did not work well or was not tolerated, or the patient preferred to manage alone (57.9, 30.9, 25.6, and 24.4%t, respectively).

"Fewer relapses coincide with more HCP engagement and more HCP engagement is associated with increased discussion of MS- and relapse-related topics, leading to improved disease management," the authors write.

Mallinckrodt Pharmaceuticals funded the study.

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