Mystery Illness? Call the Undiagnosed Diseases Network
the MPR take:
The National Institutes of Health is establishing a network of research centers to help diagnose rare and new diseases to better assist patients with extremely rare disorders. The Undiagnosed Diseases Network (UDN) will benefit the estimated 10% of the population suffering from a rare disease, defined by the 1983 Orphan Drug Act as medical conditions affecting less than 200,000 people. Six centers will be participating and are receiving four-year grants of approximately $7 million each, with expectations of seeing 50 patients per year in each center by 2017.
They baffle even the finest specialists: rare diseases that affect only a handful of people and that are often caused by extremely rare genetic mutations. “The Undiagnosed Diseases Network that we are announcing today will focus on the rarest of disorders — often those that affect fewer than 50 people in the entire world,” said Dr.
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