Mystery Illness? Call the Undiagnosed Diseases Network

the MPR take:

The National Institutes of Health is establishing a network of research centers to help diagnose rare and new diseases to better assist patients with extremely rare disorders. The Undiagnosed Diseases Network (UDN) will benefit the estimated 10% of the population suffering from a rare disease, defined by the 1983 Orphan Drug Act as medical conditions affecting less than 200,000 people. Six centers will be participating and are receiving four-year grants of approximately $7 million each, with expectations of seeing 50 patients per year in each center by 2017.

Mystery Illness? Call the Undiagnosed Diseases Network
Mystery Illness? Call the Undiagnosed Diseases Network

They baffle even the finest specialists: rare diseases that affect only a handful of people and that are often caused by extremely rare genetic mutations. “The Undiagnosed Diseases Network that we are announcing today will focus on the rarest of disorders — often those that affect fewer than 50 people in the entire world,” said Dr.

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